Do I have ENS? Hi my first operation I had submucus resection of inferior turbinates which Im not sure but dont think is too drastic. I still see these turbinates present on scan. But then I had FESS and partial middle turbinectomy which I had no idea I was having and new nothing about at the time unfortunetly or I would never have let him touch my turbinates.
Since then I have had thick post nasal drip mainly on the right side. Looking at my previous scan and post scan I can notice theres something very different with my right middle turbinate as it looks different. The report says I had some removed anteriorly and I believe this part is missing on the scan.
So I had terrible problems after this surgery. Extreme pressure feeling around my eyes and thick post nasal drip. I was told by a different ENT that the operation was messed up and that the hole to my right maxillary was in the wrong place and that it would need to be corrected.
So I had another operation as he told me this was the reason for the post nasal drip and I just wanted it to go away. So since this operation the pressure feeling around eye have gone and Im not surprised really as he apparently removed some of my ethmoid sinuses. I cried when I woke up from surgery because I was aware the post nasal drip was still there. He said it would go in time but over a year later and it has not. In fact I think its worse. I have developed other problems. I have dry/scabby nose and throat gets dry/burning. My voice has changed since this third operation. Its get hoarse and strained and I constantly clear my throat. Iv lost all joy in singing as its such a struggle something I used to love to do.
Iv recently started having problems with dry eyes. When I lie on one side my nose still gets blocked even though its all so opened up and I still get pressure feeling in right maxillary area. Iv developed severe fatigue which Im convinced is a result of a none functioning nose also depression as this whole thing is driving me crazy. Im constantly sniffing back the post nasal drip and hacking swallowing big blobs of mucus. It never goes away, never. This ENT that chopped up my middle turbinates has ruined my life. Before I had any surgery I felt healthy, happy except a bit stuffy.
Now Im depressed, fatigued just I feel my life is ruined because of this. I cant just not think about it because is so constant and uncomfortable. People always as me if I have a cold. Is it possible to get ENS if there still a substantial amount of turbinate tissue left? I was told by an ENT that he didnt think Id had that much removed. Then another one said I had a limited version of ENS and another one said I didnt have it that it was just dry from my whole sinuses being opened up. Every doctor in this world says something different aaahhhh
Does this sound like ENS?
007- 05-01-2008
Hi Emma, sounds like you have had a hard time. It seems a lot of people, myself included, who have had significant MT surgery seem to suffer severe swelling.
Dr Kerns lecture (listen to it, its good) even comments something to the like of how patients whom have had MT turbinectomies that had healthy ITs before are now diseased.
You certainly could have ENS. I am no expert but do you get dryness, crusting, burning when you inhale? does you nose feel hollow when you are not getting the swelling? does the air seem to just pass through without any feeling of an appropriate natural resistance?
erikavs- 05-01-2008
Send a CT scan to Dr Houser! He is the expert. ENS is a definite possibility - I had it with lesser damage to my turbinates and got implants. Most local doctors do not know or underestimate what ENS is. I hope you won't have to suffer so much anymore - at least you are talking to people here who know now, and you can talk to Dr. Houser as well. It takes a lot of experimenting to figure out how to feel and function better, but it can and must be done. Take care!
erikavs- 05-01-2008
Sounds alot like me, and alot of us. The doctors not knowing, recommending more surgery, doing more damage, and the same problems remain or worsen. We can't diagnose you here, but I can tell you I had all the same symptoms. My CT looked okay but when Dr Houser examined me, I had a hole in one turbinate, so it was useless. I am hoping implants will help me...it is only a month later so I am still experimenting around with treatments and solutions - mostly to help me fall asleep, my biggest problem. The dryness, thick mucus getting stuck in the back of my throat...they are still there. The implants will take a while to integrate and help improve this, and they are already helping to a degree, but it is too soon to know the final outcome. I am glad I got the implants. I am glad I found this site and that you did, too. It is hard to deal with this, and depression and stress are our reality in dealing with this extra burden, but there are things we can do.
Emma- 05-02-2008
Can anyone tell me how to contact this dr housser I live in the UK. Is there an email address or something I can use to send scans or whatever ask if he thinks he can help?
erikavs- 05-03-2008
On this message board, go to the other section, ASK DR HOUSER. People see him from abroad, and he will answer your questions online, too.
You can just call the office about the logistical stuff on how to send the scans. More specific stuff he will answer online - like what you posted above. Here is his office website:
http://www.clevelandnasalsinus.com/md-our-physicians-cleveland-nasal-sinus-sleep-ear-nose-throat-ohio.html
Good Luck Emma! Don't give up! We are all fighting thisproblem, with the added burden of no recognition from the general medical community, because they see it as a potential area for lawsuits, I think, and change is hard for them from the inside because of this. So we are trying to raise awareness and do media outreach, like on youtube. See the stuff about the youtube campaign! Maybe you will relate to the symptoms, etc.
Forumer™ is Voted #1 Free Forum Hosting provider
Build your own community today with the largest message board hosting company.