Maximum Healing From Empty Nose Syndrome

[BaileyLush]

Hey all. As i'm writing this, it is 4:46am (PST). I am having some big issues here. I got to bed at 11... couldn't sleep, so got up and got some milk, and ate some bread (trying to get the seratonin flowing). I got back in bed around 11:58, and maybe slept lightly for 2 hours. I woke up, and aven't been able to sleep since. I'm wide awake right now, not even that tired:/, but I feel like i'm going crazy.

I used to sleep wonderfully (like 9 hrs/night sometimes), and now I average around 5. The last couple nights have been worse, which scares me. I know I will feel horrible today... I don't know how much longer I can handle this crap. I'm not using any gel currently for sleep, but I think I could benefit from some?

I'm only taking 0.5mg Klonopin at night, and his doesn't seem to be doing the trick... At all! I need some help figuring this out, as I am think I am losing my marbles over here I just lay awake- acutely aware of the pain in my throat, and my shallow breathing/elevated heart rate. I don't go anywhere during the day (agoraphobia), and barely exercise anymore. I try to walk, but my heart is literally racing most of the day, so it makes it hard to do anything real physical.

I think this is a big problem considering how active I was in my "past" life. But I don't know what to do guys. I don't want to hang around if this isn't improvable. And I have no sub family (girlfriend, wife, kids, etc), hardly any friends left, nothing really. It seems like I have nothing left. I'm still waiting on the op report, but I am forced to play this sinister guessing game until I know what exactly happened to my nose.

I have begun to get hallucinations later in the day as well (visual tracers etc). And I feel as if I am not even connected to my physical body. Being younger, I feel that sleep is way, WAY essential in that I have a higher need for GH, other hormonal maitenence, etc. (not that it isnt for everyone else as well)

I'm still seeing a psychatrist weekly for the most part. But she doesn't understand- "she's just like it's anxiety, dont' search about the nose stuff- it only fuels your anxieties.". She is partially right, but I do need some help getting sleep. Sleep is critical for mental health (and pretty much anything else related to being a functioning human being). she is an MD, maybe I should plea for a sleep study next time I see her?

I need help with this guys. I have been sleep deprived for months now, and it has only gotten worse. I have no idea what to do, but a getting kinda suicidal, so that is scary What steps should I take to fix this?????? I was the epitome of health before this stuff, and now I look, and feel, like a zombie. It's devastating. But yeah I am going to try and catch some Zzzz's Much thanks.
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Don't substitute my personal advice for table sugar... Or for that of a qualified medical proffesionals:)

[miggerish]

Asalaam Alaikum (peace be unto you),

I had similar problems as you did. I would like to tell you that not to commit suicide, not just because its bad in general, but also because I want you to know that there is a religion called Islam and it is the true, unchanged, and final religion of the one Creator that he has given to human beings. He gives tests and trials to all of us. This whole life is a test, and for all of your suffering, you will be rewarded with the most amazing reward you can not imagine after death. If you commit suicide, that is an insult to the Creator of all existence, as you are disrespecting his creation by doing this. I really considered suicide alot, all the way until I was completely ready to carry it out and made plans for it. However, on the same day I asked the Creator for help and he showed me the true path. So I learned about Islam and realized that God gives us all trials even though they may seem extremely unbearable until your death. I have been learning more about the true religion and been praying to God consistantly, and amazingly, he has helped me so much with this terrible affliction ENS. If it were not for the Almighty god, I would not be alive and still surviving today.

So the advice I will give you is, please learn about Islam and ask God to help you follow the right path even if you don't believe in him. If you truly seek his guidance from your heart, he always guides those who want to be guided into the path of the light. Also, for sleeping, make sure the air you are breathing is not to cold. If it is, get a small space heater. Also, a humidifier at night helps too. Also, remember during the day to drink lots of water, more than even the average person, as water is important for the nose. Also, since you say you don't go outside alot during the day, please buy some good quality Vitamin D3, not D2. And ake about 3000 IU - 6000 IU a day for a month and see how it helps your whole body including your nose and your emotions. it truly has helped me alot. I used to not be able to sleep at all and then it kept getting better and better, especially with God's help and guidance. Also, since you may be tired in the morning, drinking green tea helps with the fatigue, as well as the health benefits of it.. I am serious, I got up to drinking about 14 cups a day, with increased water intake (i was going pee pee up to 10 times a day), and it helped so much with my nose, general well being, and also seemed to make my skin clearer on my face as a nice side benefit. Try to avoid too much sugar and no sodas or anything bad like that. No drugs like marijuana or alcohol. Try to force yourself to just go for a small walk outside in the morning around the block. An herb called Ginkgo Biloba really helps by increasing the blood flow to your brain, head, nose, and other extremities of the body. Take it in the morning though. Another thing is buying a Neti Pot and irrigating your nose with PURIFIED water, not tap water, and a little bit of natural un-iodized salt mixed in the warm purified water.

These are all the things I did, and so far, with Gods help, I am surviving way better than expected. If you commit suicide, you will not have a good afterlife with God (Allah). The most important thing of all of these tips was the believing in and asking for help from the one God, as he helped me more than anything else.

I hope this helps, and know that God is all-knowing and will hear your prayers and answer them if they are truly from your heart.

I hope this helps, and Please respond to this so we can continue to speak and share advice.

[umair]

Wish I had something to say which Improves sleep. But I havent discovered yet.

What I envision is a portable device , like a mask for the nose, which adds nasal resistance when we are breathing through the nose lying down.
Entrepreneurs take notice. Another way would be to increase congestion when going to sleep a bit so to increase resistance allowing normal sleep. This I envision could be done by taking a medicine which specifically increases the size of the turbinates when going to sleep.

After having my sleep study done it was shown that I was getting less than 7 minutes of REM sleep , which leaves me disoriented , confused , mentally cloudy , heavy and dull. It makes it impossible to function as I did pre-surgery.

I have tried many things , sleep medicines , anti-anxiety medicines and advice from a professional neurolgist/sleep specialist.

According to the sleep study report I have about 60% sleep efficiency , but no sleep apnea.

Therefor I am waiting for the day when one day God(Allah in arabic) will
accept my prayers. I pray almost daily to him especially when I am so sleep deprived that even my body starts hurting .

Unfortunately doctors are not really aware of ENS that much and dont really know how to treat it as treatment is not well understood. Even diagnosing someone with ENS is very hard as people with ENS are suffering from a range of issues which affect their personalities.
In my case the most severe and annoying is sleep deprivation.

I have been trying to cope with these problems for a while. You have to accept the state you are in .

Best of luck.

[BaileyLush]

Thank you both:- I appreciate and admire your words of religion miggerish, but I do not believe in god. I hope this doesn't offend anybody! I respect all of your beliefs, but will have nothing to do with formalized religion as part of my own beliefs/guidance, etc.

I am empirically minded. For better or for worse:S If I believe in anything, it is in a pantheistic- completely nebulas "enitity", that humans can't even begin to fathom. I will leave it at that...

I agree that insomnia is the worst feature. It is nuts. I wake up- throat dry as a desert at about the same time every morning/night. The mucous just ceases movement, and my throat gets sore as hell. Ahhh!

I believe glycerin is helping at night. I like to invert then apply glycerin. I ruptured a blood vessal recently form inverting though:s So I have to be careful with that now...

I like green tea to miggerish:D But I have to be careful with the caffiene- I have bad panic attacks. I go outside of the house everyday and bask in the sun for at least 20 minutes. I had a 25 hydroxy or whatever they call it (vitamin D test), and the endroconologist said I have extremly high vitamin D levels. "Some of the highest I have ever seen"... Lol I hope that isn't a bad thing as D is fat solubale.

I am not giving up. I just panic when I don't sleep. Full stop. But here is a short list of things I do~

-Light aerobic exercise, push ups, eat about 70% raw, take an herbal supp, use bi-neural beats, get acupuncture, meditate, invert (not the last couple of days), take fish oil- B vitamins- vitamin C, rebound, use hot compresses, irrigate, pure natural glycerin, periodic massage, etc etc.

Some days I change it up... But I am hanging tight. I am glad both of you are 2 I am sorry to hear about the achy body stuff Umair. I get pains everywhere sometimes 2. Hope it gets better for you as well.
_________________
Don't substitute my personal advice for table sugar... Or for that of a qualified medical proffesionals:)

[umair]

Also one thing I would like to say.
Acceptance is very important if you want to be at peace with any problem.

And BaileyLush I have noticed that you are very active on this forum.

I believe that it will be better for you if you stop using the forum for a little while. Trust me. You need to get your head cleared by staying away from this forum a little while as no one here is really a medical professional [except one or two doctors] , people are just giving their opinions, but if you are constantly on this forum reading so many opinions it will to distort your perception about yourself.

Trust me on this, take a break for a month and you will be healthier.

[leogeo]

Unmair, that is good advice and I am going to take a break for a while as well.
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I am not a qualified medical professional. These are my personal views only.

[007]

Hi All

I am not religious, but when people offer words of support from their religion (Islam, Christianity, Judaism, Buddhism, Spirituality) I respect that and am thankful that something so important to someone else, is used respectfully to direct positive thoughts on others.

Bailey, like me you may not be religious, but it is wonderful to see people of religious faiths (in this case Islam) offering you positive encouragement.

I only wish I had a strong faith and believed as it would probably get me through this and life a lot easier but alas what I believe is evolution and mother nature, and for us ENTs have messed around with what mother nature gave us and intended for us to have.
_________________
My views and thoughts only,
Although I have personal experiences, I am not qualified.

[BaileyLush]

Yeah, you have a point 007. I feel bad about being so curt, and feel like I owe Umair, and Miggerish an apology- So sorry if I offended either one of you!!! I didn't mean to, and I really do appreciate the tips!

The only thing that threw me off Miggerish- was this:

"but also because I want you to know that there is a religion called Islam and it is the true, unchanged, and final religion of the one Creator that he has given to human beings"

While it is wonderful that you have beliefs that help strentghen you, and great that you are willing to dole out hope to others, I think your apporach is a bit strong. There are (and *were*) many different belief systems in the world- all of which have many different beautiful traditions, and lessons to learn from. your post implies that everyone who isn't a practioner of Islam is wrong. Maybe you didn't mean it to come across like this? If not I apologize again! But I think it is important for people respect other peoples beliefs (or lackthereof), and try not to subscribe to a totalitarian mindset.

Umair- I was also kinda upset that you would get jumpy with me on two different threads. Just because I don't agree with you, doesn't entitle you to think there is something wrong with me. I don't think there is anything wrong with you, or your beliefs... I just would like my own respected as well.

You were right about the break- and I appreciate the advice alot. I actually told TE I might leave for good, as it seemed I was getting jumped a little to much But maybe I am just an unlikeable guy? It happens! Anyhow I just got back on today because I recieved a PM, and am keeping in coorespondence with Anthony about infared devices.

Now I will continue my little break, and say that I am sorry again for my own errors in judgement regarding Miggerish, TE, and Umair. I hope all of you guys are doing well. I will be on periodically to see if any of you guys have found anything AMAZING, and also if I discover something that could benefit the whole as well.

Peace out!

-Kai
_________________
Don't substitute my personal advice for table sugar... Or for that of a qualified medical proffesionals:)

[BIGPAPPA]

Hi Bailey Lush

I would recommend taking a cold shower after your heart shower. When youre in the cold water try to take 40 deep breaths i know its hard but the cold water along with the deep breathing can stimulate your parasympathetic nervous system. After this you can run hot water again to warm up. After this stand on your head not exactly try to have your face parallel to the ground for a few minutes, after you can do some deep breathing. All these things will help balance your emotions, it will help counter the secondary and tertiary damage done by the butcher when he operated on your turbinates. You will be more likely to be in a more relaxed state, you will be more likely to go into brain waves that are associated with good emotions, and you will be more likely to go to sleep. In addition you are doing accupuncture have your accupuncture try some urinary bladder points on the heart. I have never found anyone who has sleep disturbance and not have those points imbalanced, working those areas with needles energy work, will help balance you.

[maxwell1]

Better for your body to try and use natural sleep remedies if possible. This website offers some good products:
www.thehealthstore.co.nz/en/c/Sleep_Aids